Saturday, September 12, 2009

Big things going on here!

1. Georgia gave me her first real smile yesterday! I offered to feed her, and I got the biggest smile. Later on I got a couple more as I made every silly face and noise I could come up with.

2. She also slept through the night last night! She's still having belly troubles (reflux) so last night she cried and fussed for hours, then I guess she was exhausted. She slept from about 12:30 till 6:30 this morning! After I fed her, she slept for 3 more hours! I remember that Nate started sleeping through the night right after he started smiling, so maybe Georgia will be the same way. Even if it was just a fluke, I like it.

3. Nate is now paci-free! For the last few weeks, he's only had it while sleeping, and he's done really well during the day. So I decided this weekend was a great time for the Paci Fairy to visit. I started prepping him for it the day before, and he was excited that the Paci Fairy was going to bring him a train in exchange for his paci. He said, "I have an idea! Let's pick a train! How about .... Hank!" So she brought him Hank. His first night, he cried for a bit, but I went up to talk with him once and assured him he'd learn how to sleep without it and that I was right downstairs if he needed me. He talked until after 10, but he fell asleep. Yesterday morning he was so excited about Hank that he didn't even want breakfast! And that's saying a lot for Nate! Later, he took a nap, and last night--after some crying and having to go talk to him a few times, he fell asleep just fine again. He's only asked for it a couple times, but then he remembers on his own and doesn't ask anymore. I'm very proud of him--he's a big boy.

4. School went better this week. He walked a lot more and wasn't so exhausted when I picked him up. I'm glad they had a short week. On Tuesday the teacher aid called and told me he fell and bumped his head. He had a large bruise and a pretty bad scratch that they had to doctor up. He was fine, of course, and it didn't bother him for long. Yesterday when I picked him up, the teacher told me he had done a lot more walking this week, and they let him walk even if it takes him 10 minutes to walk down the hallway. Good. Then she said that since his fall on Tuesday, they are making him hold someone's hand when he walks. He kept telling them, "I walk by myself" but they told him that his mom said I had to hold their hand. She said she hoped it was okay that they said that. Well, no. That's probably very confusing for him since I would NEVER say that! Ha! My mantra is "Let go of my hand. You can walk by yourself." I realize they want to keep him safe, but at some point that is at a cost to his independence. So I'll give it some time and hope this hand-holding thing doesn't last long. Maybe the PT will tell them to knock it off.

This morning we went to the SBAK's Poker Run to see the motorcycles off. The kids like to see the bikes, and the bikers like to see the kids they are helping. There was a huge turnout! It was awesome. I was talking with a mom of a 4 year old, who is cute as can be and doing well in a walker. She said she didn't know about her daughter's SB until the birth. After an emergency c-section and thinking the baby had swallowed some meconium, the doctor told her, "Everything is fine. There's just one small problem. She will never walk." That's how he gave her the diagnosis. Even though I have heard so many of these awful stories, they still take me by surprise. Our "Delivering the Diagnosis" project with the SBAK is still ongoing. We're currently working on gathering a focus group of doctors to give us input on the project. I hope the information we give OBs will prevent situations like the one this mom experienced.

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