Monday, June 14, 2010

Some strange things going on with Nate ...

This month we're doing Minds in Motion, which is sort of like therapy but not exactly, to help with Nate's sensory issues. They do vision therapy (helping his eyes work together better) and listening therapy (they do it once a day there, and we do it another time at home, and on weekends we do it twice) and they also do lots of other playing and exercises there. This sensory stuff is REALLY messing with Nate. I'm hoping this is just the "it has to get worse before it gets better" kind of thing and we're in the dark before the dawn, but I'm starting to get pretty nervous.

The worst thing is that he is VERY emotionally unstable and screams/shrieks like he's ON FIRE half the day. Over every little thing. He wakes up at night, and it looks a lot like night terrors, except I think he is actually awake, but he can't stop crying. He also cries for a long time when he goes to bed. We try everything to help him calm down, and you can tell he really doesn't even know what's wrong himself. He's inconsolable.

But there are a few even stranger things. He is clenching his fists all the time. He also wants to have socks in his hands all day. (I know, it's really weird.) It started a couple months ago when we'd take his socks and shoes off, he'd "drum" with his socks. They're his "drumming socks." But the last couple weeks, he needs his drumming socks all the time. Today, Blake brought the kids to the golf scramble I was working at, and Nate carried his socks with him and drummed them while running around.

He's also clenching his teeth, where it looks like he has something in his mouth, but he doesn't. And today this progressed from teeth clenching to sticking out his tongue. A lot.

With some of the behavior, I think, Oh, well, it's his age. They all do weird things and go through phases. But when I see some of this stuff, it's totally not normal. I really think it's Minds in Motion, especially the Listening Therapy. This is some powerful stuff. I only hope that he gets over some of this and it's just stuff he has to work through to really get on track. The purpose of all this was to help him stabilize his moods, and to make him more physically stable when he stands and walks. So far, it's backfiring. We're about halfway through the month. It's got to get better from here on out, right? It's really bad, people!

2 comments:

Gretchen said...

My son Nathaniel (also has SB) also has a TON of sensory issues. We have had ups and downs over the years, but I have yet to find anything that takes it all away. My Nat is 10 and still does some wierd stuff when he is anxious (which is A LOT) and still has extreem behavioral issues. Some of our stuff is tongue hanging out of the corner of his mouth, picking skin off of his fingers, constantly patting his leg, havingto be touch if he is stressed, over reaction to ANY loud sound (fire drills at school are nightmares, I have been know to keep him home from school when i know that they are going to have on because that sound throws his entire day to hell!) and refuses certain textures to eat. But there are MANY we have been sucessful in stopping too... especially the biting and the shreeking...

If you want to talk about it any feel free to stop by my blog (SimplySoares.blogspot.com) or email me at gretchen@butterfly-boutique.org :)

GOOD LUCK!!!!

Melinda said...

Oh, Colleen. I am so sorry that he is responding this way. How frustrating and disconcerting this must be. I hope it gets better quickly. This sensory stuff is horrid!