We were planning on doing the surgery in Boston on Nov. 11. I didn't like having to wait that long, but I was dealing with it. Then last night I got an email from the nurse saying the doctor had a couple conferences out of town and they scheduled Nate for Dec. 9!!! This was my email to her:
"That is 42 days from now. He has this huge hump of fluid on his back and can't leave the house except for doctor appointments. He has missed 7 weeks of kindergarten, and can't even do physical therapy right now. This has been going on since Labor Day. We are in Spina Bifida purgatory right now. Is that the absolute soonest we could do surgery? I am so disappointed. Nov. 11 was such a stretch for us already, but another month of this is inthinkable."
This morning I got an email to call her. She said she and Dr. Warf made a new plan. Nate has an appointment with Dr. Warf on TUESDAY. Whoa, whoa, whoa, do you mean this coming Tuesday? Yes. After his appointment, he will be admitted to the hospital. (This is only slightly different from the plan I had already come up with to just show up at the ER and hope Dr. Warf could see us, but better since it was his idea!) While inpatient, he'll have an MRI. Dr. Warf is on call next week, so his surgery will be either Wednesday, Thursday, or Friday. Whatever--better than Dec. 9!
So I am overjoyed that we are going to get this show on the road, but of course we are now frantically trying to prepare for a trip! Leaving work for 2 weeks unexpectedly is overwhelming! And snowpocalypse is getting ready to hit Massachusettes. We have to find flights and hotels (and they're all booked or super expensive) and pack. But I'm not complaining. This is better than I could have asked for.
We are flying in on Monday, and I'll try to update from Boston!
3 comments:
Oh, Colleen!!! So much happening. I'm so anxious and excited for you guys. I will be praying so hard for this week to go flawlessly, for guidance for his NS, strength for you, and quick healing for Nate. Lots of love.
Good luck!
Thank you for the update, please continue to let "us" know how you and Nate are doing. Being away from family for a surgery is no fun but you can do this!! I am SO glad to hear that they were willing to fit you in. Gently pushing for what your child needs is so important at times like these, so good for you. My love and prayers are with you all.
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